Patient Experiences with Hemophilia Treatment: A Qualitative Study on Quality of Life and Treatment Access

Authors: Jalal A. Hassan, Abdulmohsen A. Alotaibi, Saud M. Awaji, Turki K. Ainosah, Saleh S. Almutairi

DOI: https://doi.org/10.5281/zenodo.13846138

Short DOI: https://doi.org/g5vtkz

Country: Saudi Arabia

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Abstract: Background: Hemophilia is a chronic condition requiring lifelong management, but patients often face significant barriers in accessing treatment. These barriers, along with treatment side effects, can severely impact quality of life.

Objective: This qualitative study explores the experiences of hemophilia patients with treatment access, side effects, and the impact on their quality of life.

Methods: Semi-structured interviews were conducted with 20 hemophilia patients at a tertiary hospital. Thematic analysis was used to identify key themes related to treatment access, quality of life, and side effects.

Results: The findings revealed financial and geographic barriers to treatment, significant physical and emotional impacts on quality of life, and frequent side effects from factor replacement therapy, including joint pain and infusion-related complications.

Conclusion: Addressing treatment access barriers, providing mental health support, and minimizing treatment side effects are crucial for improving hemophilia care and patient outcomes.

Keywords: Hemophilia, treatment access, quality of life, side effects, financial barriers, qualitative study

Paper Id: 231257

Published On: 2020-02-04

Published In: Volume 8, Issue 1, January-February 2020

Cite This: Patient Experiences with Hemophilia Treatment: A Qualitative Study on Quality of Life and Treatment Access - Jalal A. Hassan, Abdulmohsen A. Alotaibi, Saud M. Awaji, Turki K. Ainosah, Saleh S. Almutairi - IJIRMPS Volume 8, Issue 1, January-February 2020. DOI 10.5281/zenodo.13846138

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